“I am no longer alone”: Evaluation of the first North American camp for, youth living in families with Huntington’s disease


By bhadmin February 2, 2021

This paper provides evaluation data on one unique camp in North America, targeting children and youth who have a family member with Huntington’s disease (HD). Specific research questions addressing improved well being across several measures including resilience, self-esteem, life satisfaction and disease specific knowledge addressed include: 1) Across genders, do youth report an increase in knowledge about HD and support in dealing with HD after attending the camp; 2) Are resilience, self-esteem and life satisfaction improved across genders as a function of attending the camp? 3) How do youth feel after attending camp?

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